Page 1 of 13
European Journal of Business &
Social Sciences
Available at https://ejbss.org/
ISSN: 2235-767X
Volume 07 Issue 01
January 2019
Available online: https://ejbss.org/ P a g e | 557
The Stigma and Discrimination of HIV/AIDS
DHYAN SINGH(RESEARCH SCHOLAR)
SINGHANIA UNIVERSITY
SUPERVISOR NAME: DR SUMAN(ASSISTANT PROFESSOR)
DISTRICT INSTITUTE OF EDUCATION & TRAINING(DIET),KURUKSHETRA
Abstract
Although stigma is considered a major barrier to effective responses to the HIV/AIDS epidemic,
stigma reduction efforts are relegated to the bottom of AIDS program priorities. The complexity
of HIV/AIDS related stigma is often cited as a primary reason for the limited response to this
pervasive phenomenon. In this paper, we systematically review the scientific literature on
HIV/AIDS related stigma to document the current state of research, identify gaps in the available
evidence, and highlight promising strategies to address stigma. We focus on the following key
challenges: defining, measuring, and reducing HIV/AIDS related stigma as well as assessing the
impact of stigma on the effectiveness of HIV prevention and treatment programs. Based on the
literature, we conclude by offering a set of recommendations that may represent important next
steps in a multifaceted response to stigma in the HIV/AIDS epidemic.
Keywords: epidemic,stigma,pervasive,multifaceted.
Introduction
The Human Immunodeficiency Virus (HIV) and the Acquired Immune Deficiency Syndrome
(AIDS), is the epidemic that has become the biggest threats to human survival, development, and
prosperity in the all parts of the world. HIV/AIDS related stigma (H/A stigma) is invoked as a
persistent and pernicious problem in any discussion about effective responses to the epidemic. In
addition to devastating the familial, social, and economic lives of individuals, H/A stigma is
cited as a major barrier to accessing prevention, care, and treatment services. Despite widespread
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European Journal of Business &
Social Sciences
Available at https://ejbss.org/
ISSN: 2235-767X
Volume 07 Issue 01
January 2019
Available online: https://ejbss.org/ P a g e | 558
recognition of the differential treatment of persons living with HIV/AIDS (PLHA) by society
and its institutions, over the first 25 years of the epidemic, community, national, and global
actors have only had limited success in alleviating the deleterious effects of H/A stigma. In
describing a sustained response to the HIV/AIDS epidemic, Peter Piot, Executive Director of
UNAIDS, identifies tackling stigma and discrimination as one of five key imperatives for
success. At the same time, Piot notes that stigma reduction efforts are relegated to the bottom of
AIDS program priorities, often without funding to support such activities.
In this paper, we systematically review the scientific literature on H/A stigma to document the
current state of research, with an emphasis on identifying gaps in as well as summarizing
existing knowledge on the four aforementioned challenges to effective intervention–defining,
measuring, assessing impact of, and reducing stigma. In assessing impact, we critically examine
the literature to elucidate the relationship of H/A stigma to the effectiveness of HIV prevention
and treatment programs. Finally, based on the available literature, we offer recommendations for
each of the four challenges that we believe represent critical next steps in ameliorating the
devastating effects of H/A stigma.
Defining Stigma: Conceptual Considerations
The conceptualization of H/A stigma that underlies most of the literature today mirrors the
stigma concept utilized for a broader set of health and social issues, such as mental illness or
unemployment. In the H/A stigma literature, the concept of stigma is often not explicitly defined,
but rather, is referred to cursorily as “a mark of disgrace”. The absence of an explicit
conceptualization of stigma precludes meaningful appraisal and comparisons of study findings
and limits the ability to design effective programs and interventions.
Early Work
Based on his work in psychiatric hospitals and among criminals and homosexuals, Erving
Goffman provided a seminal theorization of health-related stigma in the 1960s. Goffman defined
stigma as “an attribute that is deeply discrediting,” and that reduces the bearer “from a whole and
Page 3 of 13
European Journal of Business &
Social Sciences
Available at https://ejbss.org/
ISSN: 2235-767X
Volume 07 Issue 01
January 2019
Available online: https://ejbss.org/ P a g e | 559
usual person to a tainted, discounted one”. He established that society stigmatizes on the basis of
what is constitutes as “difference” or “deviance,” and results in a “spoiled identity”. The social
label of deviance compels stigmatized individuals to view themselves and others to view the
stigmatized as discredited or undesirable.
Socio-cognitive Approach
Goffman’s theorization of stigma was fruitfully adapted and extended by social psychologists
interested in how individuals construct categories and link these categories to stereotyped beliefs.
This body of work emphasized perceptions of individuals, the origins of stigma in human
cognition, and the consequences these individual perceptions have for social interactions. When
applied to HIV/AIDS, this socio-cognitive framework constrained the concept of H/A stigma to
an examination of how PLHAs are labeled and stereotyped by the public, based on their incorrect
beliefs and attitudes, and/or a focus on the specific emotions and cognition of PLHAs. This, in
turn, limited the scope of stigma reduction interventions to strategies that might increase the
empathy and altruism towards as well as reduce the anxiety and fear of PLHAs among the
general population or individual based interventions to assist PLHAs to cope with perceived or
experienced stigma. The great majority of articles on H/A stigma measurement and reduction
interventions identified in this review either implicitly or explicitly utilizes a socio-cognitive
conception of stigma. While important, these approaches exclude a detailed consideration of
structural aspects of stigma – the dynamic social/economic/political processes that
simultaneously produce and intensify stigma and discrimination.
Structural Understanding of Stigma
Recent work in the sociologic and anthropologic disciplines has broadened earlier conceptions of
stigma to encompass the structural conditions that contribute to stereotyping. One of the key
insights is that the process of stereotyping based on an attribute is not only a cognitive
phenomenon at the level of the individual but also is determined by a constantly changing social
process . Parker and Aggelton argue that “it is especially important to think of stigma as a social
and cultural phenomenon linked to actions of whole groups of people in the developing world,
