Page 1 of 23
Journal for Studies in Management and Planning
Available at http://internationaljournalofresearch.org/index.php/JSMaP
e-ISSN: 2395-0463
Volume 01 Issue 07
August 2015
Available online: http://internationaljournalofresearch.org/ P a g e | 632
Mobility Aids and Burden among the Parents and Caregivers
of Differntly Abled Children
Sukhdeep kaur1& U.V Kiran 2
Student1 & Professor2 Department of Human Development and Family Studies, School for
Home Sciences, Babasaheb Bhimrao Ambedkar University, Lucknow-226025, Uttar Pradesh,
India
ABSTRACT
Purpose: Disability is thus not just a health
problem. It is a complex phenomenon,
reflecting the interaction between features of
a person’s body and features of the society
in which he or she lives. The present study
aims at mobility aids as well as the burden
among the care givers of the differently
abled children. Methodology: In the present
study descriptive and corrdational research
design is used for obtaining a good grasp of
the phenomena of interest and for advancing
knowledge through good theory building.
Lucknow city was selected as the locale of
the study, as it is convenient for the
researcher to conduct the study. Market
survey, case studies are used to assess the
mobility aids among the differently abled
children. Results and discussion: foldable
wheelchairs has got maximum facility and
easily available into the market because of
its feature such as foldable, fixed seat, two
solid wheels with breaks, foldable footrest
and it nominal cost which is affordable by
middle income group. It may be also be
noted that wheelchair with more functions
are also on demand to reduce their work
burden because of its additional features
such as four wheels, commode seat for toilet
facility this will help to reduce the burden of
parents/caregivers. But shopkeepers opined
that parents from low income groups are not
able to afford wheelchairs with more
functions as they are costly. Mobility aids
play important role in the life of cerebral
palsy children’s on the basis of the market
survey and case studies where in
information was collected from various
sources i.e. vendors caregivers, trainer and
personal observation the following needs of
a mobility aids were identified: Supportive
belts ,Headrest ,Adjustable armrest and
Adjustable footrest. Conclusion: This study
was highlighted factors predictive of burden
in parents of children with disability. It is
difficult to completely change the burden
Page 2 of 23
Journal for Studies in Management and Planning
Available at http://internationaljournalofresearch.org/index.php/JSMaP
e-ISSN: 2395-0463
Volume 01 Issue 07
August 2015
Available online: http://internationaljournalofresearch.org/ P a g e | 633
behavior of the parents and caregivers of the
differently abled children. There are many
factor which causes the burden to the
parents and caregivers of the differently
abled children’s like disability of the
children, mobility aids of the children’s or
the main and main factor of the burden of
the parents / caregivers is the socio- economic status of the family, which leads
more burden to them. Hence, the level of
burden is high among the parents and caregivers
of the differently abled children due to many
factors, which effects the life and also their life
style which affects the life and also their life
style. There is a wide disparity in how
caregivers adjust to the specific demands of
care. Of the parameters studied, regarding
overload and burden in caregivers.
Keywords: Mobility aids, parents and
Caregivers, Burden, Differently abled
children.
INTRODUCTION
Disability is thus not just a health problem.
It is a complex phenomenon, reflecting the
interaction between features of a person’s
body and features of the society in which he
or she lives. Overcoming the difficulties
faced by people with disabilities requires
interventions to remove environmental and
social barriers.
People with disabilities have the same health
needs as non-disabled people – for
immunization, cancer screening etc. They
also may experience a narrower margin of
health, both because of poverty and social
Page 3 of 23
Journal for Studies in Management and Planning
Available at http://internationaljournalofresearch.org/index.php/JSMaP
e-ISSN: 2395-0463
Volume 01 Issue 07
August 2015
Available online: http://internationaljournalofresearch.org/ P a g e | 634
exclusion, and also because they may be
vulnerable to secondary conditions, such as
pressure sores or urinary tract infections.
Evidence suggests that people with
disabilities face barriers in accessing the
health and rehabilitation services they need
in many settings (World Health
Organization. Retrieved11 August 2012).
The term "disability" broadly describes
impairment in a person's ability to function,
caused by changes in various subsystems of
the body, or to mental health. The degree of
disability may range from mild to moderate,
severe, or profound. A person may also have
multiple disabilities.
Conditions causing disability are classified
by the medical community as:
inherited (genetically transmitted);
congenital, meaning caused by a
mother's infection or other disease
during pregnancy, embryonic or fetal
developmental irregularities, or by
injury during or soon after birth;
acquired, such as conditions caused by
illness or injury;
Of unknown origin.
Across the country, the highest
number of disabled has been reported from
the state of Uttar Pradesh (3.6 million).
Significant numbers of disabled have also
been reported from the state like Bihar (1.9
million), West Bengal (1.8million), Tamil
Nadu and Maharashtra (1.6 million each).
Tamil Nadu is the only state, which has a
higher number of disabled females than
males. Among the states, Arunachal
Pradesh has the highest proportion of
disabled males (66.6%) and lowest
proportion of female disabled.
Table no-1- Census data of Indian
population
Population Percentage
(%)
Total
population
1,028,610,328 100.0
Total
disabled
population
21,906,769 2.1
Disability
rate ( per
lakh
population)
2,130 --
